I don’t know how hard it is, but I know a lot that isn’t. When I started having mysterious nerve -related symptoms in early 2019, I was tested for multiple sclerosis, multiple sclerosis, Lyme disease, vitamin B12 deficiency, and many other things for several months. I had countless blood tests, two MRIs, and one particularly bizarre test where the doctor used something (incorrect, but I remember the cows) to stimulate the nerves in my ankles. ankle and foot to see if they are working properly. And they did the work. Well, actually, I almost hit the nurse in the face.
“We usually do this test on older children with diabetes; “They just go there,” the nurse said with slightly reassuring sincerity. I wanted to do a good job testing – I always had a pretty good streak – I held back from enduring the painful shock, I couldn’t hold my hand to my chin until I got home. It was so bad that all the blood vessels in it were broken, leaving my chin red and blue (one of those little parts of me that cows don’t bother with).
The nerves work so well – of course, this is the result I want. But no one can explain why my legs feel (and still feel) full of radiostatic, or why my leg muscles also ache and contract. Or because Mitrialda’s legs are static On Top When I open my neck. It’s the most annoying symptom and one of the most exhilarating doctors I’ve seen in my relatively healthy 32 years of life (0/10, I don’t recommend feeling that doctors admire you).
But they call themselves the common cause of this strange symptom, which I’ve heard since Lermit’s Sign, Excluded. (And perhaps the description of this symptom doesn’t quite fit how I feel.) After taking test after test, I was determined to find out what it was so I even made a spreadsheet in detail. My symptoms, family history and everything I do for a few months before the symptoms. I know – There are some things that are really disgusting. I should have hoped that, if not for the final diagnosis, I would still be taken care of by the doctor.
My doctor was intrigued when he saw in my spreadsheets that my mother and grandmother both had noticeable tremors, a condition that made their right hand tremble, especially when trying to do things that required good skills. motor. My 93-year-old grandmother uses a typewriter that is charming enough to write messages on my birthday cards (until now!), Her handwriting is no longer legible. It felt somehow related, as if the condition had landed in good faith below the genetic line, but was misdirected and landed at my feet.
But still not really added. I have to settle for the hazy reasons “maybe” given to me. A neurologist told me that the radiostatic sensation may be related to my migraine, which I have had since adolescence. My doctor said possible let it Fibromyalgia, The conclusion I can say not satisfied. He hasn’t been added to my chart, even now. And, honestly, I understand. There is no test to confirm this. This is who knows, a kind of shoulder diagnosis with a shrug emoji and it looks like me. My wife said, “It’s like Jessica’s syndrome,” when I showed her a list of symptoms, and she was pretty scientific in the diagnosis.
My doctor recommends an exercise that is somewhat similar to an anti-climatic treatment. However, it contributes to seizures. If I get discouraged, they won’t last long, like I walk my dog so as not to break the sofa.
With so many horrible diagnoses that seem to be ruled out, I can describe myself as a healthy 36 year old, I believe. Or “healthy star”. Or “Calm down if you’re getting enough exercise”.
I don’t know what the mysterious root problems and the COVID are and I’m not trying to understand. With a certain mix of determination, privilege and luck, I still can’t imagine it. I have never seen that little pink stripe in a quick COVID review. And while I doubt that my lungs will be affected by the previously drooping position of my shoulders, I have always been concerned with long -term hatching. I’ve been doing something for a long time and I prefer not to add any more burden.
“The pandemic really interests me where I fit in when it comes to healthy and sick people. And that’s a very simple way we’ve all come together over the past two or so years.”
The pandemic really made me wonder where I fit in when it comes to healthy and sick people. And that’s a very simple way we’ve all put it together over the past two or so years. Do you have diabetes (which out of 10 Americans have it)? Unhealthy. Is over 65 healthy? Unhealthy. Asthma? Diretso ka. The club has been healthy The worst liar.
But I still want to go in. A year after being diagnosed, I hardly ever talked about my symptoms, even with my husband. It became pretty clear that I wasn’t going to solve the puzzle, so I just wanted to show them that they weren’t. Whenever possible, I did everything but ignore my symptoms.
Recently, speaking about finances, I had to talk to my husband about it. He just couldn’t understand why I wanted to put aside the money I earned. (And, to be honest with him, we’re almost at the bottom of the world, yeah? Why not get an arcade car?)
But the truth is that any level of numbness (which is probably a static sensation) in my feet is not good and I have no idea what it means to use my feet in the next unknown years. . I’m okay now, I can pretend nothing is happening. And so I like it. Talking to her about why I want to dedicate is a moment of nudity, a reminder that all is not well – I’m not 100% okay. – And who knows when or why we may need savings in the future.
It’s hard to say how many people live with a secret disease, but how many 30 million Americans live with a rare disease. And I guess I was there, probably. But I went I have to find the source at all costsuntil I need to live as healthy as possible and be content with what I have. This was, in retrospect, a tremendous change in thinking.
This worldview maintains common sense (mostly), but it also implies some hope. I no longer have any hope of losing my symptoms because hope means focusing on them. I had to get a failing grade to move forward.
This may seem familiar to people with long -term COVID. At some point we will go from hope to practice: to better manage life’s symptoms, in the hope that nothing will get worse.
When I had close contact with a positive work case in the fall of 2021, I was told, “Oh, you’ll be okay,” that he didn’t really know if I was going to be okay. This comment was no doubt influenced by the fact I live in the Midwest and almost everyone shows a “tough” attitude when it comes to COVID. How I love the luxury of choosing such an attitude.
But honestly, I was pretty glad this person commented. I really want to be part of the group that he thinks he belongs to – where there are healthy people – that I might belong to. I can still get through.
Jessica Carney is a Midwestern nonfiction writer and host of the podcast “And Then I Left”. She is writing a book about the wild experiences she had as an event planner. Find it on Twitter: @JessC_writer.
Do you have a compelling personal story you’d like to see posted on HuffPost? Find out what we are looking for here and send us the presentation!
Source: Huffpost
