The celebrity’s son lives with a rare neurogenetic disease called Angelman syndrome.
Irish actor Colin Farrell shared for the first time the story of his 20-year-old son James, who lives with a rare neurogenetic disease – Angelman syndrome. He spoke about it in an interview with People magazine.
The son of his ex-girlfriend Kim Bordenave has several symptoms, including developmental delays, inability to speak and act independently. However, thanks to intense training, he learned to feed himself.
“I want the world to be kind to James. I want the world to treat him with kindness and respect. James worked so hard all his life, so much. Repeat, repeat, balance, his jerky walk. When he first started feeding himself , by the end of the work his face looks like the artist Jackson Pollock But he succeeded, he feeds himself well every day, because I think he’s simply magical,” the artist said.
James will turn 21 in September and will no longer be eligible for many government support programs available to children with special needs. For this reason, Farrell decided to talk in detail about life with his son for the first time and announce the creation of a foundation that will provide support to adult children with similar diagnoses through advocacy , education and innovative programs.
“This is the first time I’ve talked about this, and the only reason I’m talking about it is because I can’t ask James if he wants to do it,” he explained “I talk to James like he’s 20 years old old, he speaks good English and has age-appropriate cognitive abilities but I can’t get a definitive answer from him, so I have to make decisions based on what James, what he’s kind of a young man, and what. he has goodness in his heart.”
It was previously reported that Zlata Ognevich addressed her fans with personal health news.
Actress Daisy Ridley has been diagnosed with a rare disease
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Source: korrespondent
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